Thank you!

Dedicated to Chris Teodosio, my loving husband, and Allison, Dave, Emily and Maddie Beggs

lymeheadWell, it’s been about a year and a half since I came down with Lyme and embarked on my adventures. And what a year and a half it has been!

I went from being an energetic, functioning Mom, wife, and Kindergarten teacher, to a bed-ridden one, who was out of work for six months.

I became my own best advocate, needing and finding treatments outside of the regular medical field. I slowly found my stamina and drive come back over many months, but I’d be remiss if I didn’t recognize that I wouldn’t be in this healthy place if it weren’t for my husband. Through a series of connections, he led me to my ‘woo woo’ guy in New York, who has really helped me get my life back.

It was not easy to think “outside the Western Medical box” and go the naturopathic route. It took a huge leap of faith for me to do so, but I had gotten to the point in my illness that I really didn’t have much more to lose, other than more of my health and livelihood.

And that just wasn’t an option for me. 
20160805_135125

My biggest struggle with this illness has been the impact of a no sugar, no wheat, no carbs–basically,  a “no fun food” diet. I have been very faithful to what I call my “kale, meat and green tea” diet. Healthy, but not always embraced in our carb-laden society. Nor what my taste buds really wanted to enjoy, either!

But I think my diligence with the diet and the supplements is starting to pay off a bit.

I just recently started eating my favorite summer lunch: mini mozzarella balls, grape tomatoes, cucumbers, and almonds—topped with dressing made with Apple Cider Vinegar, olive oil, and seasonings.

I’m also drinking more flavored teas (I live on the edge–I brew 3 green tea bags and 1 ginger together for a full pitcher of tea.)  This past weekend, I tried a seltzer with orange flavor after having worked in the yard pretty much all day.  It was both refreshing to be outside that long AND drink the seltzer without pain!  YIPPEE!

But this kismet hasn’t been without the constant support of my family and friends.

My sister posted an adorable picture of her daughters doing the Lyme disease challenge in my honor today. Her caption was, “A little late and a continent away, but we did it for you!”

It made my heart swell and made me a little teary.

Because it’s never too late to show your love and support for anyone.

I realize how fortunate I am that I have experienced so much support from the start of my diagnosis so long ago.  Family members would reach out, some of them daily, and my co-workers and students were so generous with their own time and gifts as well.  I still look at the cards and mementos that I received from time to time; it seems so surreal that I was out of the classroom for so long, and for something that I didn’t even realize I had, until my symptoms became impossible to ignore.

When I went back to work this past fall, my colleagues would often ask how I was feeling. It doesn’t seem like much, but those little interactions often got me through some rough days. Days that had nothing to do with my Lyme, but rough nonetheless.  It showed that people really did care and were thoughtful enough to ask.

And even though I am much better, people still ask about my health and share all kinds of information with me about Lyme, just in case I missed something new that has popped up in the news on Lyme research.

My sister’s photo of my nieces biting into slices of lime is yet another reminder to me  of how even the smallest action, like a card or email or photo, can really boost someone’s spirit.

So, thank you for thinking of me.

Thank you.

Thank you.

Thank you.

And think about how you can support those closest to you.

Love is free…so give it freely!

Yours in Lyme Adventures,

TWL

Revelations

images
 

Google images

 

This past year has been one full of revelations for me.

My health took a turn for the worse, thanks to an unseen tick bite, causing me to be out of work for six months. I was forced to seek answers from both the medical and naturopathic communities.  I found more help in the natural solutions than in the man-made chemical ones.  It was not a very easy road to go down, but one that continues to surprise me and show me that Mother Nature really should be consulted more often!

Easter Sunday, with all its culinary delights, came at me full force this past Sunday. One of the major issues with my Lyme is my compromised diet. I decided to not worry about possible pain and stinging that I would undoubtedly feel after eating dinner, and just eat small amounts of the foods that I haven’t been able to eat for the past 15 months.

Surprise! Surprise! It was revealed unto me that I could eat with no pain!

I ate stuffed shells—with both cheese and meat. No stinging! (The cheese bothered my stomach a bit, but I was thankful that was all that bothered me.)

I ate some green beans—no stinging!

I ate some mashed potatoes—no stinging!

I ate porketta and ham with horseradish—no stinging!

And then…I tried….dessert.

I ate a sliver of chocolate cream pie with homemade whipped cream, two anginettes, and two of my own biscotti. Hey, if I was going to cheat, and if anything would bother me, I’d rather it be the dessert!

I was so thankful that none of this bothered my system. None.of.it.

I did notice that my knees and elbows had pain later on that night…like really late, like 2 am late…but wow! Oh Wow! If that was all I was feeling, was I ever thankful!!

That’s not to say that I’m going to start eating all carb-laden foods again. I clearly still have the Lyme bugs in my system, but the fact that I could eat so many different foods without that nasty stinging side effect within a half hour of eating really made me thankful.

And hopeful.

images-1
 

Google images

 

Yours in Lyme Adventures,

TWL

Review of 25th Edition of The Complete Book of Essential Oils and Aromatherapy

 

IMG_1003
Notice the post it notes…

When I was first dealing with my Lyme disease during the fall and winter of 2016, I was doing lots of research, both online, in books, and in person. With so many issues popping up daily, there was never enough information to help me find the right solution.

By spring, I had starting feeling better, after having several months of a new diet and numerous appointments with medical and holistic practitioners. I was ready to try something else to help me heal even more, and I had the opportunity to learn about essential oils at a workshop at a local organic nursery. I also spoke with a few representatives who sold them for various companies. While this newfound knowledge was very informative and helpful, my own experience with Lyme taught me that my body had become extremely sensitive to foods and compounds. I wasn’t really looking to sign up for programs and pay money for products I may or may not use or may be a source of more pain and complications for me.

In end, I decided that the best route for me to take would be to find a good book to help me learn which oils to use for what purposes. And that is when I discovered Valerie Worwood’s book The Complete Book of Aromatherapy, New World Library, 1991.

As a ‘rookie’ in the essential oil world, I loved this book. Not only was it easy to use, it was also very comprehensive in its approach of how to use the oils for what purposes. There were recipes for any type of use: cooking, cleaning, or germ fighting. In the back, there was a listing of reputable oil companies to purchase from, which for me, was great information. With my own immune system so compromised at the time, and so many companies were jumping on the EO bandwagon, this was very helpful information for me. Interestingly enough, she does list the two major essential oil companies, Young Living, and doTerra, in her first book. But due to my own knowledge of the bad blood between the two businesses, I personally boycotted those two and purchased other recommended oils at local stores in my area.

The 25th anniversary edition has recently been published, (2016) and I was fortunate enough to receive a copy from the publisher. And much like the first volume, this one also is a great edition to anyone’s library.

Ms. Worwood’s does a deeper exploration of the history of essential oils in this volume; and for me, this is a great asset to the book.   My epiphany about the health value in using essential oils came when reading this section. Our ‘advanced’ technological and medical age has overshadowed the fact that these oils have been used for thousands of years by various cultures across the globe. My own health issues combined with this knowledge about essential oils really indicated to me that the medical community needs to takes notice of ways to help people heal from aliments without the use of synthetic or manmade compounds. Imagine if more doctors used more natural ways to healing the body!  They may be out of a business, but we’d be a healthier community, for sure!

The 25th edition has great reference charts for oils as well—a dilution chart, conversion charts, a quick reference chart about oils, and also more detailed profiles on essential oils which grace the pages of this book from beginning to end.

What I love about the new book is that there is notably more information for all types of ailments at any age, from birth all the way to what she gently describes as the ‘maturing’ years.   I have family members dealing with stress, fatigue and other more serious health issues. Ms. Wormwood details explicitly how oils can be used in any number of situations. While she does specifically state that this book is not intended to heal or substitute for medical advice, I do find that as a Lyme disease warrior, there is something in here for everyone. Whether you are interested in more ‘green cleaning’, ways to use essential oils in cooking, or just want to learn something new about a very old and everlasting health practice, this is an informative and easy to reference book to have on hand.

As someone who is now at the point in my learning to start to experiment more with essential oils to improve my health further, I am happy that this book is gracing my coffee table. ( I reference it quite often—it hasn’t made it to the bookshelf yet!)

Yours in Lyme Adventures,

 

TWL

One Year Ago

December 2016

 

One year ago, I was diagnosed with Lyme.

lymeheadAnd I still can remember all the difficulties I faced as my Lyme progressed from annoying symptoms to full-blown pain, brain fog, dietary issues, weakness, and exhaustion, and finally, being out of work for six months.

I can remember early on, trying to keep a semblance of routine at home and make my daughter’s lunch for school. That 10-minute job caused me extreme exhaustion, and a return trip to bed for two hours.

I remember trying to exercise on the advice of medical doctors, which never went well.  Later on in that winter, I tried vacuuming a 5×7 rug. I needed a three-hour nap after that.

I remember starting what I call my Lyme Bible.  It contained sections with each doctors’ contact information, copies of my blood work reports, diagnoses, as well as my food diary and symptoms tracker.  DataScientistJobDescriptions

I remember my husband asking me one morning, “Where is the jelly?” And I literally did not know. I couldn’t tell him, and I got upset because I knew my brain was literally fading a way bit by bit, and there wasn’t anything that any medical doctor was telling me that was helpful or hopeful.

I remember being frustrated listening to people with MD after their names giving me any number of diagnoses: Lyme, not Lyme, fibromyalgia, coxsackie, EBV, a virus…and even, “Yes, you have Lyme, coxsackie, and EBV in your blood work, but we don’t know what is causing your symptoms. Just eat right and exercise.” I’ve got letters that I’ve started that I intend to send to all these medical professionals to both ease my conscience and anger, but also potentially change how they actually address a patient’s course of treatment when they have Lyme disease.

I remember hearing about a holistic practitioner that helped a cancer patient who had tremendous results after major health issues. At that point, I was ready to find a new avenue that didn’t lead me to another medical doctor whose hands were tied against me.20160413_103853

I remember thinking during my first appointment, his methods seemed so strange and out of the box in terms of medical treatment as I knew it, and yet, after only 4 months, I was back at work full-time and able to conquer my full teaching day without turning into a puddle by 10:30 am!

I remember feeling so tired from work, I was in bed by 5:30, and still not rested to face the next day. Squeezing the shampoo bottle in the shower bothered my right thumb, and drying my hair with the hair dryer made my elbows hurt tremendously. Even driving would bother my elbows.  And reading…forget it.  After ten minutes,  I could feel my mind drifting away from the words on the page.

I remember a time last year when I didn’t put the my prized under-the-counter radio on when I was in the kitchen.  It’s presence changed from a comfort to just noise. The feeling of wanting music on had left me, and it didn’t bother me for many months that I didn’t put the radio on to keep me company.

Tonight, I connected my Bluetooth Pandora on my phone to that radio. I listened to a Martina McBride holiday channel, and I sang along to almost every song. It was  like a drug to me; I realized how much I had missed my music and I finally had the chance to enjoy it again.  I had to force myself to turn it off and go sit down when tiredness of the day trumped the music.

As I am writing this, I am thinking of how fortunate I am that my health has returned almost to normal and I am enjoying things that I couldn’t do a year ago.

What a difference a year makes!

Yours In Lyme Adventures,

TWL